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Pathological Demand Avoidance (PDA)

The Pervasive Drive for Autonomy

Written by Georgie Makary, 2026 - All rights reserved


Pathological Demand Avoidance (PDA) is a term used to describe a pattern of intense resistance to everyday demands and desire for independence. It is most often discussed in relation to autism and children with oppositional or defiant behaviours. In the clinical world and research literature, PDA is typically understood as a behavioural profile of high levels of demand avoidance, a strong need for control and an intense anxiety response in situations that feel unpredictable or autonomy-limiting (O’Nions et al., 2013; Stuart et al., 2020). PDA is not included as a formal diagnosis in classification systems like the DSM-5. It is better conceptualised as a descriptive profile of characteristics that show a high co-occurrence in neurodevelopmental conditions like Autism and ADHD (Kildahl et al., 2021; Green et al., 2018).


In recent years, many autistic communities and advocates have moved away from the term pathological, instead describing it a Pervasive Drive for Autonomy. This reframing reflects an empathetic shift in understanding that neurodivergent responses to stressors are not disordered or wrong. Rather than viewing demand avoidance as antisocial behaviour, it is seen as a meaningful response to situations that are perceived by an individual to be overwhelming, challenging or unmanageable. From this perspective, the emphasis is placed on autonomy as a fundamental human need for good mental health, rather than on compliance as the goal.


The key to understanding PDA is the perception of a demand (Dion, 2018). What is demanding for a neurodivergent brain is often different for a neurotypical brain. Demand avoidance often reflects the reality of being asked to do more when the nervous system is already under strain. Sensory input may be overwhelming or difficult to filter, executive functioning can make initiating or sequencing tasks harder and poor procedural memory can mean that everyday activities require more conscious effort. Alongside this is the continuous energy required for masking and self-monitoring, interpreting social cues, transitions and hyperfocus. When demands are added on top of all of this, avoidance can emerge as a protective and regulating response. 


Being asked to brush your teeth may not be perceived as challenging if you are neurologically wired to eliminate irrelevant sounds, smells, vibrations, tastes and does not require conscious thought for the sequence of toothbrush, toothpaste, water-on, wet toothbrush, water-off, brush teeth up-down-around, spit, water-on, wash toothbrush, water-off. 


Research supports the idea that demand avoidance is closely linked to anxiety, unpredictability and sensory overstimulation. For example, Stuart et al. (2020) propose that when everyday demands are experienced as unpredictable or externally imposed, they can trigger heightened threat responses like anger and aggression. Similarly, Work by O’Nions et al. (2013) found that individuals described as having a PDA profile often showed elevated emotional dysregulation to challenges. These findings align with a neuroaffirming understanding of behaviour as adaptive: avoidance, negotiation or refusal may function as ways of maintaining a sense of safety and control over self, rather than as deliberate defiance.


PDA remains a debated construct in the scientific community. A systematic review by Kildahl et al. (2021) shows a relatively small research base and inconsistencies in how PDA is defined and measured in studies. There is debate about whether it represents a distinct subgroup within autism and should be included as a diagnostic feature, or if it reflects broader processes that can be applied across a range of developmental and mental health conditions. 


Despite the evidence-base for PDA being in its infancy, the concept has been useful in practice. For individuals and clinicians, the PDA framework provides language to describe experiences that might otherwise be misunderstood or mislabelled as oppositional. When these behaviours are interpreted without context, the classroom being a good example, individuals are more likely to experience shame, exclusion and inappropriate or harmful responses from others (Nawaz & Speer, 2025). In contrast, approaches that recognise underlying distress and prioritise individualised support are associated with more positive outcomes. Moore (2020) also reflects on whose expectations are being prioritised and whether “demand avoidance” is sometimes a reasonable response to a world not adequately accommodating neurodivergent needs.


The neuroaffirming approach to PDA at Lilly Pilly supports individuals to change their perception that specific life-demands are challenging, overwhelming or out of their control. This includes an increase in self-awareness and self-compassion, attention to the cumulative load of stress and finding effective self-regulation tools. 


References 


Green, J., Absoud, M., Grahame, V., Malik, O., Simonoff, E., Le Couteur, A., & Baird, G. (2018). Pathological demand avoidance: Symptoms but not a syndrome. The Lancet Child & Adolescent Health, 2(6), 455–464. 


Kamp-Becker, I., Schu, U., & Stroth, S. (2023). Pathological demand avoidance: Current state of research and critical discussion. Zeitschrift für Kinder- und Jugendpsychiatrie und Psychotherapie, 51(4), 321–332. 


Kildahl, A. N., Helverschou, S. B., Rysstad, A. L., Wigaard, E., Hellerud, J. M. A., Ludvigsen, L. B., & Howlin, P. (2021). Pathological demand avoidance in children and adolescents: A systematic review. Autism, 25(8), 2162–2176. 


Dion, L. (2018). Aggression in play therapy: A neurobiological approach for integrating intensity. W. W. Norton & Company. 


Moore, A. (2020). Pathological demand avoidance: What and who are being pathologised and in whose interests? Global Studies of Childhood, 10(1), 39–52. 


Nawaz, S., & Speer, S. (2025). What are the experiences and support needs of families of autistic children with Extreme (or ‘Pathological’) Demand Avoidance (E/PDA) behaviours? Research in Autism Spectrum Disorders, 119, 102515. 


O’Nions, E., Viding, E., Greven, C. U., Ronald, A., & Happé, F. (2013). Pathological demand avoidance: Exploring the behavioural profile. Autism, 18(5), 538–544. 


Stuart, L., Grahame, V., Honey, E., & Freeston, M. (2020). Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents. Child and Adolescent Mental Health, 25(2), 59–67.

We acknowledge the traditional owners of the land, the Wurundjeri and Bunurong peoples of the Kulin Nation, and pay respects to Elders past and present. 

Sovereignty was never ceded. 


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